Tonight I Gave the Love of My Life Permission To Die
It is 3:00 am and I can finally hear Brian, the love of my life, breathing normal; regular, steady, clean breathing. And I am beyond relieved because a few hours ago, through snot and tears, I was telling him to go, that is was ok to leave me, that it was ok to die.
Let me take you back a few hours, when his first of four seizures began today. Yes, the first of four. The first one came immediately upon returning from a beautiful walk together. He started to feel it coming; the waves of pain at the back of his head, the dizziness, and lightheaded feeling that creeps up before the storm strikes. Walking up our winding staircase to our apartment, I thought it was going to happen right there on the stairs. Because it's happened like that before; me trying to hold us both up, teetering on a stair where one slight slip, would send us both tumbling to, at the very least, a few broken bones and at the very worst, well, you can imagine.
We made it inside, on the bed, where the seizure immediately hit. The rigid body, arched back, screams of pain and then nothing. No movement. No pain. No breathing. Absolutely nothing. This is where I begin my count. Slowly, calmly, 1, 2, 3...to 20. Nothing. I began CPR and he jolted back to life, gasping for air after only two pumps on his chest. Relieved and thankful, we settled in to our regular routine; him resting or on his laptop, me on mine. Life as normal, except this is not normal at all.
The second seizure hit soon after, a repeat performance of the first, but this one lasted a little longer and was a little more harsh in every way possible. A few hours later, seizure number three came on, fast and furious, followed by number four...the worst one yet. The aftermath of number four led me to my pleas for the love of my life to leave me. He returned to me groggy, slightly incoherent but still able to talk, and it was the words that he said that led me to believe that perhaps it really was time.
After a seizure, he is sometimes in what I call, the in between world and tonight, he stayed there for longer than usual. His eyes were closed, and his face was completely relaxed, feeling no pain whatsoever, and he smiled. I asked him why he was smiling and he said, It's Akila. I asked him who Akila was and he said it was his Husky. He also said that Max, Forte and Cinnamon were there too and they said to him that they could carry him over the bridge. I thought I knew everything there was to know about Brian, but I found out later, that in fact he had a Husky named Akila when he was a small boy and the others were dogs from his and our adult life. During our in between conversation, I asked him why he couldn't go with the dogs and he said that once he stepped on the grass and onto the bridge, he wouldn't be able to return to me. He then looked up towards the ceiling in our apartment and smiled. I of course asked what animal was there now and he said, No, it's mom and dad. He reached his arm off the bed and said that his mom wanted to hold his hand and she asked him to walk with her. He held it there for a few seconds then frowned, dropped his hand back on the bed, and said, mom's mad at me. She says I have to stop fighting so hard. I can't win every fight. But dad says that I should do what I have to do.
Then he began to cry and through ragged tears managed, I can't leave you yet. I'm just not ready.
Right then and there I made a selfless decision to let him go. To not beg for him to come back to me. I saw the peacefulness on his face, the painless, crease less, beautiful face and I knew that his mom and dad and our dogs were on the other side, waiting patiently to take care of him for me. And I had to let him go.
But the thing is, he's not ready to leave me.
So I sit here and I listen to his breathing, hoping that it continues, wondering if he'd be better off if it didn't, wishing he wasn't also so selfless to be concerned about me when he is going through such hell every single day of his life. It's an impossible situation, and it's one I have to release control of. Whatever is going to happen will happen, but I truly take solace in the fact that when the time is right, he will be going to a wonderful pain free existence, with loved ones, human and canine alike.
This I believe with all of my heart and soul.
Proud Member of :
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the whole Italian community is close to you in this moment @lynncoyle1 ...
Thank you so very much @thenightflier, and to the entire Italian community. I had no idea that even existed, so I appreciate you coming by so very much!
My girl. I am so sorry for last night and all you witnessed. I know we made a pact that I would die on my terms and not under some white sheets in a hospital. I love you and your strength always amazes me. LOve you more each day.....
Ah baby, I'll keep going as long as you do because it's your strength that amazes !
I love you more :)
Agree with you there..not under some white sheets in a hospital.
Thank you @immarojas. The way we are doing it seems much more full of life, instead of waiting for death. I appreciate your support and understanding very much.
You're welcome. Not when u want it, it seems. Just be ready.
You are strong..we are rooting behind you.
Thank you again; your words touch my heart!
Chin up @lynncoyle
wow. i dropped to tears. Love is truly stronger than anything else. I believe you both can enjoy life without seizures. The power of love. i pray you get healed miraculously. Because this love you two share is beyond natural. You'll get better, i know. please don't leave her.
I fight to try andstay. Your words are beautiful
Strong words .. Be courageous and you will be good
Great post from you
Thanks for sharing
Thank you very much @slimanepro. I appreciate your kindess.
wow, this write-up is touching. Most times we need to stop being selfish and let go, no matter how painful, it may feel.
Thank you very much. Yes, I believe we must do what's right for the person suffering; it's selfless and it's what love is all about. Thank you again.
I don't have words, which as you know, is not a common thing for me, but I've got to put something here.
When I first saw your post, I seriously considered skipping it. I knew from the title where it was going to take me and I didn't want to go there.
But now I've read your post, and I'm exactly where I knew I would be—in tears, wishing there was something in my power that could just make this all go away—the cancer, the seizures, the hanging on, the need for both of you to let go—all of it.
But I don't even have the words, so how I can manage any of the rest?
The only thing I think I can offer is a strong belief that is steadily growing—and your account of Brian's inbetween time helps to strengthen this belief—that this life is not all there is, but that life continues beyond this all too short and imperfect purview we call mortality.
I believe in purpose. We don't just poof into existence, and we don't just poof out. I believe that in one way or another, this life is just a speed bump between an infinite existence before we arrived here, and one that stretches into eternity on the other side.
I believe we can reunite with loved ones after this life. I believe the loves and friendships that we develop here can and do exist beyond this life.
It sounds like you believe the same, and if you do, this is just all one soul's affirmation to another.
I don't have the words. I can only hope what I'm feeling and what I hope for both you and Brian can somehow be conveyed in the novel length comment I've left here. :)
Oh I think you found the perfect words my friend. Your comment has left me in tears as well, so perhaps in some strangely sad way, we are even now. Your soul conveyed exactly what I needed to hear, the dire hope that we "reunite with our loved ones" after this purposeful journey. I used to believe that all things happen for a reason, but after these last few years, I'm beginning to think that sometimes shit happens but how we deal with that storm is really what's important. Brian and I are doing our best to do just that, and of course, live every day in gratitude. This morning the sun seemed to shine brighter, the breeze fresher, my coffee tastier, all because he woke up too. It's all I ask for anymore.
I agree with you. There are still some things that happen for a reason, and there are other things that happen because it's life. Either way, as you say, I too believe it's what we do with either of those situations that actually matters. The whole lemons into lemonade cliche.
It's amazing how simple life can be when it's boiled down to its essential essence. "He woke up, too."
Standing in my shoes, you do quickly realize what's important in life and what is utter nonsense. My sense is that generally speaking, people focus too much on the nonsense, until it's way too late. I'm thrilled however, that Brian and I have lived our time together, focusing on what's really important to us. No regrets...
Beautifully written @glenalbrethsen. I had a lot of the same thoughts you did. You expressed it nicely.
Glen is really very eloquent and I know it's all in your heart as well @beeyou :)
You know I am just too tired and lazy to write these days Lynn, but my heart is there with you both. Glenn said it perfectly, no need to repeat. :)
I know that @beeyou; I completely understand and know what you mean.
I think everyone who commented here did. I know in my case I'm hoping it's the thought that counts.
It certainly is the "thought that counts" in my eyes. Period.
Those were very kind and heartfelt words @glenalbrethsen. Thank you for them.
I thought so too @mistermercury and am very appreciative of @glenalbrethsen and his words.
I appreciate that, and you're welcome. If they actually do something, I don't think they're my words alone, so feel free to share in them if you like. The more the merrier. :)
Beautiful Post
Thank you.
So sorry to hear where things have progressed to, but also so happy to hear what's waiting for him. So many of us are there in spirit to support you both.
My bet is also on this wonderful person too @lynncoyle1. Both Gene and @osm0sis are wonderful caring individuals showing support to others on here.
@beeyou, this is why you are "The Cheerleader" :)
Imma cheerleader too with @beeyou
🎶💗🎶
I'll take all the cheerleading I can :)
You are an awesome cheerleader @yogajill! ❤️
😘
Thank you for reading my girls post.......
Sending you all my strength and love Brian. Been thinking about you 2 for hours... At a complete loss for words. Hold her tight, and know that you have an impact bigger than you could ever imagine.
Brian says thank you @osm0sis; he's done for the day now, but we both said that your "loss for words" seem to pass on the sweetest sentiment. Just enjoy your own life to the fullest; by sharing our story, we hope others do just that! Thank you again.
Thank you very much @randomwanderings, for everything. I really do take some solace knowing "what's waiting for him" and now I can also include your spirit in that list of solace and gratitude as well. Thank you very much!
this post really made me feel emotional. reading about the in-between world sent chills down my spine. im a Curie curator by the way and ill be submitting this and i hope a lot of people will be able to read this post. wish you and Brian all the best!
Thank you for giving my girl some attention. She is my world and I thank you sir
you are a awesome gentleman
Thank you so very much @andywong31! After such a difficult night last night, to wake up to this makes my heart warm. I appreciate very much you submitting my post to Curie, but I appreciate even more your warm wishes and kind words. I have to believe that all the positive thoughts and prayers that come from people here, has to do something !!
Thank you again from @briancourteau and myself. We are both overwhelmed with the outpouring of emotion that comes our way here.
No more bets! THANK YOU for submitting this post for @curie review. @lynncoyle1 has such a beautiful heart and spirit, and she writes exceptional posts on here. I'm happy that you took a chance with submitting this post.
I know if it wasn't you then any of the other individuals I upvoted would have done it because they all have the same caring hearts.
thank you my friend..........hugs..........
Be sure to take care of yourself so you can hug Lynn every night. Stay strong and know we care very much for the both of you.
Thank you for this @beeyou! Your words here touch my heart more than words can express.
You are one strong woman @lynncoyle1. How you are able to put this experience into words and share it with us is a complete mystery to me. Sending you even more strength. Much much love to you and Brian💓
My bet is on this wonderful person here @lynncoyle1. I always love to see you around @osm0sis. :)
Thank you again @beeyou; your support for all things good always makes me smile!
Thank you so much @osm0sis, your kindness and empathy does not go unnoticed by me. I needed to get it all out of me last night the only way I know how, and that is by writing. Brian and I have been overwhelmed at times such as this, with the outpouring of love and warm wishes from everyone here, so sharing it seemed a natural extension of me trying to process it all.
We both appreciate the strength and love that you are sending our way. Thank you.
Prayers and good vibes to you guys, your love is beautiful.
Thank you so much @camomilla; Brian and I both appreciate your kindness.