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im sorry, what condition do you have if you dont mind me asking? If it is something you cant help and people are taking pictures of you, thats really terrible.

I am a dialysis patient for about 15 years now and developed a rare bone condition on my face and spinal bone. Leontiasis and Kyphosis.
Terrible yes because it is progressing and is giving me worries.
I just went on here to find support really.