Steemit Türkiye GOODNESS EVENT | DONATE TO BABY WITH SMA KUMSAL ADA DAĞAŞAN | %50 tr-charity

Today I will tell you about the charity event we started for a baby with sma. Please, if you want to donate, you can add tr-charity account as a beneficiary.

What is SMA Disease?

SMA (Spinal Muscular Atrophy) is a muscle disease that affects the anterior horn motor nerve cells in the spinal cord and restricts mobility.

Its incidence is 1/10,000 worldwide and 1/6,000 in Turkey. Due to the degeneration seen in anterior horn cells; Protein production necessary for the function of the nerves that control our muscles cannot be realized.

Weakness and wasting (atrophy) are seen in voluntary muscles.

Inability of nerve cells to perform their function; causes weakness and often fatal muscle weakness. Involuntary muscles are not affected by this disease.

The eyesight and hearing senses of individuals with SMA are not affected by the disease. Intelligence; is normal or above normal.

These families are pushing their own means to reach this drug.

https://taplink.cc/sma.kumsala.umutol

Zolgensma Pharmaceuticals; £1,800,000
£1,078,000 remaining for each medication
every last days to take the medicine ....!!

It is impossible for a person with a bad economic situation to take this medicine, and it is impossible for a family with a high level of economy. There are many families whose babies have died. Some continue to collect donations in this way. 25% of the money was collected for his medicine. They're trying to save the rest so their babies don't die. The family received the determined offer from the hospital abroad . That's why it's very important for them to reach their goal.

All permits are available. And when the donation is made, the invoice information is announced on the @tr-charity account as proof.

%5 yararlanıcı: #tr-charity5
%10 yararlanıcı: #tr-charity10
%15 yararlanıcı: #tr-charity15
%20 yararlanıcı: #tr-charity20