RE: HIPAA is not consumer centric
I see health data similar to how Google, Facebook , Linked-In, etc. and the social media treat our personal information. Much like a health data record, they maintain an electronic record, but instead of health history they maintain all of our posts, preferences, spending patterns and so on in which they build out a complete map of our existence. They can then complete any holes through their artificial intelligence algorithms and deep learning and discover ways to monetize our life for their business benefit and for marketing to us.
Health data, buy default of individuals not having choice with how it is used, will slowing erode the little privacy we have left. The health industry without doubt is looking for ways to monetize this treasure trough through secondary use. I'm a private guy. I want a choice. I also want any monetization of my data to have to have my opt in with a choice for what I'm willing to accept in payment for their use if I opt in.
Do you see any path toward data use and monetization of it being required for patient opt in? What can we do to prevent the health industry from slowing dumbing us down on this issue until they have finally and successfully coopted our health data to the point where we passively accept it because we have no other choice?
Yes, the monetization of health data for consumer benefit (they get paid for use of their data) is just now being considered. This is mostly because consumers have started to demand control of their health data. Technology to control access and permissions based on consumer preferences is not available today. So innovation must occur.